Pain Warriors Unite - (202) 792-5600

Pain Warriors Unite

Calling ALL Pain Warriors, It's NOW or NEVER!

Pain Warriors Unite

Calling ALL Pain Warriors, It's NOW or NEVER!


Fellow Pain Warriors --

We must UNITE to fight for the Rights of Millions of Pain Patients! 


Click Below get involved NOW!

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Fellow Pain Warriors --

We must UNITE to fight for the Rights of Millions of Pain Patients! 


Click Below get involved NOW!

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Welcome to Our Community Website

Welcome to the Pain Community's first ALL INCLUSIVE website! 


This website was created BY pain patients FOR pain patients, advocates, health care professionals, and anyone else who would like to join in our COLLECTIVE cause to reveal what's happening to MILLIONS of Patients and Physicians who are being HARMED by the government's MISGUIDED policies in an attempt to reduce overdose deaths. 


We must stand TOGETHER and fight back against the OVER REGULATION of prescription pain medications.  WE are  advocating for FAIR and EQUAL  policies that will protect our interests and preserve access to ALL modalities that pertain to the treatment of CHRONIC & ACUTE pain and to prevent the UNDER treatment, NON treatment, or ABANDONMENT of Americans in pain. 




Please Click Below for Official Press Release

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**ACTION ALERT** Meet with YOUR REPRESENTATIVES

Call to schedule a meeting Today

It's CRUCIAL for all CPP'S to CALL to Schedule a meeting or attend local events to discuss the implementation of our National Pain Policy.


Send them the link to the HHS Pain Task Force's Report here:

https://www.hhs.gov/ash/advisory-committees/pain/reports/index.html 


Please use our handy Legislative Outreach Kit & ask for assistance if necessary.   The only way to change the current pathway which has created a hostile regulatory environment is to GET INVOLVED IN THE LEGISLATIVE PROCESS ASAP 

 


CLICK HERE TO LOCATE YOUR STATE & FEDERAL REPRESENTATIVES 



Legislative Outreach Kit

Instructions ,  Tips, and Links to locate & Contact Your State and Federal Representatives & Regulatory Agencies 



ENGAGE WITH YOUR REPRESENTATIVES BY ATTENDING LOCAL TOWN HALL MEETINGS ,  MEET & GREET,  and OTHER  EVENTS IN YOUR STAE .  

FIND UPCOMING EVENTS HERE 

Please Get Involved Now

Calls to Action & Team Tasks

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What can YOU do to help?




If you need help,  please let us know & we'll be happy to provide the information you'll need!



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HHS ISSUES UPDATED OPIOID GUIDANCE

HHS Warns Doctors To Not Swing Too Far On Pendulum Away From Opioids For Chronic Pain Patients



As the country grapples with the opioid epidemic, there's been a broad crackdown on opioids in general. Now, HHS is urging doctors not to go too far in cutting off prescriptions. Other news on the crisis focuses on the court challenges to Purdue Pharma and other drugmakers.



Summary:


HHS' assistant secretary for health Dr. Brett Giroir urged clinicians to collaborate with patients on deciding how fast they reduce or stop their opioid therapies.

"We know that it is critical that clinicians manage acute and chronic pain in an individualized, patient-centered way," Giroir said.

There have been numerous reports of individuals being abruptly cut off their medication regimen after the Centers for Disease Control and Prevention's Guideline for Prescribing Opioids for Chronic Pain in 2016, according to Giroir.

The CDC guidelines recommended clinicians prescribe opioids only after exhausting other pain therapies, prescribe the lowest effective dosage, evaluate patients within 1 to 4 weeks of starting opioid therapy for chronic pain, and taper or discontinue opioids if the harms OUTWEIGH the benefits.

"Clearly, we believe that there has been a misinterpretation of the [CDC] guidelines, which were very clear," Giroir said. "People have inappropriately misinterpreted cautionary dosage thresholds as mandates for dose reduction."


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Urgent Press Release from CDC

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Pain Management Task Force Meeting overview

RE: Overview of Pain Management Task Force Meeting & Recommendations



View Task Force's Final Report HERE


The purpose of this final meeting was for the Task Force members to disseminate and discuss the final report in full detail. They debated and deliberated to carefully refine the language and terminology to avoid future misinterpretation or misapplication. They reviewed the consensus of thousands of comments submitted by the public during the previous public comment

Summary:


Click Below for our Summary of the Meeting 

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Report Adverse Drug Effects to FDA

What to Report to MedWatch:


Use the MedWatch form to report adverse events that you observe or suspect for human medical products, including serious drug side effects, product use/medication error, product quality problems, and therapeutic failures for: 


  • Prescription or over-the-counter medicines, as well as medicines administered to hospital patients or at outpatient infusion centers
  • Biologics (including blood components, blood and plasma derivatives, allergenic, blood transfusions, gene therapies, and human cells and tissue transplants. For example, tendons, bone, and corneas)
  • Medical devices (including diabetes glucose-test kit, hearing aids, breast pumps, and many more products)
  • Combination products


Resources:  

Find a Pain Specialist

Find a Pain Specialist: 


https://health.usnews.com/doctors/search?specialty=Pain 

https://www.controlyourpain.com/find-a-pain-management-specialist/ 


Tips for Finding a Pain Specialist HERE:  https://paindoctor.com/pain-management-doctors/   


Tools for Patients:  https://www.painscale.com 


Search for pain management doctors from the following sources:



Find Upcoming Events in Your State:

 https://indivisible.org/events 


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URGENT BULLETIN

** URGENT BULLETIN ** Please SHARE with all State& Federal Representatives and Regulatory Agencies in charge of regulating Controlled Substances/Opioid prescribing. 


Re:  CDC Guideline Clarification Letter & FDA Advisory Notice pertaining to Opioid Prescribing 


Below is a letter from the CDC clarifying the 2016 Opioid Prescribing  Guideline and an Advisory Notice issued by the FDA regarding abrupt opioid tapering. 


Link to Clarification Letter from the CDC: CLICK  HERE


The Guideline is not intended to deny any patients who suffer with chronic pain from receiving opioid therapy as an option for pain management. Rather, the Guideline is intended to ensure that clinicians and patients consider all safe and effective treatment options for patients. 


Clinical decision-making should be based on the relationship between the clinician and patient, with an understanding of the patient’s clinical situation, functioning, and life context, as well as a careful consideration of the benefits and risk of all treatment options, including opioid therapy. 


CDC encourages physicians to continue to use their clinical judgment and base treatment on what they know about their patients, includes the use of opioids if determined to be the best course of treatment. Providers should communicate frequently with their patients to discuss both the benefits and risks of opioid therapy and revisit treatment plans for pain regularly to achieve the most positive outcomes for patients. 


Link to FDA Announcement CLICK HERE  


Reports of "serious harm" in patients dependent on opioid painkillerswho suddenly stop taking the medication, or rapidly decrease the dose, have prompted a drug safety communication issued today by the US Food and Drug Administration (FDA).

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National News Coverage About Harmful effects on CPP'S

April 26th report by Shepard Smith about the harms to chronic pain patients as a result of the overarching CDC Guidelines. 


Link to Video:  https://youtu.be/2Jg0ZV9ftFE


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Fox News' Greg Gutfeld has been reporting about our plight for several months.  Watch the most recent segment about the CDC Clarification featured on "The Five"


Watch segment here:  

  • https://video.foxnews.com/v/6024911665001/?playlist_id=1040983441001#sp=show-clips9show-clips9


Former Drug Czar Dr. William Bennett:  "the problem isn't rx drugs...talk to the coroner's, I have. It's Fentanyl & meth that's the major cause of death today."



 Jennifer Braceras, Esq. vs Dr. Mark Siegel discuss the Opioid Trial Verdict:


Did the government overcorrect on the opioid epidemic?

Jun. 26, 2019 - CDC guidelines have led to doctors cutting back on painkiller subscriptions, leaving patients fighting to get the medication they need.



Fox News’ Dagen Mcdowell's Mom suffering from bone CANCER has to fight with her doctor to receive pain medication.

WATCH ️ https://youtu.be/dQx3ycdmSFM 

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HIPPA & PATIENTS PRIVACY

HIPPA and the opioid crisis


The U.S. Department of Health and Human Services Office for Civil Rights has released new guidance explaining when HIPAA permits health care providers and other covered entities to share a patient’s health information with loved ones and others involved in a patient’s care in these situations.


The guidance explains:


  • Providers can share information with an individual patient's loved ones in certain emergency or dangerous situations, such as when the patient is in a crisis and incapacitated, or is facing a serious and imminent threat of harm.


  • Patients with decision-making capacity retain their right to decide when and whether their information will be shared, unless there is a serious and imminent threat of harm.


  • Patients' personal representatives, who have authority under state law to make health care decisions for patients, may request and obtain information on behalf of patients.


View the guidance.


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PRESS RELEASE FROM HP3 - RE: CDC GUIDELINE

 


** PRESS RELEASE**  


https://healthprofessionalsforpatientsinpain.org/press-release


FOR IMMEDIATE RELEASE APRIL 10, 2019


TWO FEDERAL AGENCIES SPEAK AGAINST MANDATED OR PRECIPITOUS OPIOID REDUCTIONS IN CHRONIC PAIN PATIENTS 


On April 10, the Director for the Centers for Disease Control and Prevention, Dr. Robert Redfield, wrote to Health Professionals for Patients in Pain (HP3) to state that the CDC’s 2016 Guideline offered no support for mandatory opioid dose reductions in patients with long-term pain. Coming on the heels of an April 9 warning from the United States Food and Drug Administration of “serious harm” to patients after rapid dose reduction or discontinuation, the Director’s letter flags the need for a recalibration of care decisions imposed by a wide range of private and governmental agencies that have invoked the CDC to justify coverage restrictions, quality metrics, legal threats and other actions to force dose reductions on nonconsenting patients.



Please CLICK BELOW to read Press Release & Access the CDC Director's Letter responding to the HP3 Letter 



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