Pain Warriors Unite - (202) 792-5600

Pain Warriors Unite

Calling ALL Pain Warriors, It's NOW or NEVER!

Change Starts with YOU

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Please get involved  by completing the latest Calls to Action and Team Tasks below. 


Our collective efforts are making a HUGE difference no matter how big or small. 


We need YOU to take the time to do whatever you can to be victorious in this fight for our LIVES. 

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**ACTION ALERT** Meet with YOUR REPRESENTATIVES

Call to schedule a meeting Today



It's CRUCIAL for all CPP'S to CALL to Schedule a meeting or attend local events to discuss the implementation of our National Pain Policy.


Send them the link to the HHS Pain Task Force's Report here:

https://www.hhs.gov/ash/advisory-committees/pain/reports/index.html 


Please use our handy Legislative Outreach Kit & ask for assistance if necessary.   The only way to change the current pathway which has created a hostile regulatory environment is to GET INVOLVED IN THE LEGISLATIVE PROCESS ASAP 

 


CLICK HERE TO LOCATE YOUR STATE & FEDERAL REPRESENTATIVES 



Legislative Outreach Kit

Instructions ,  Tips, and Links to locate & Contact Your State and Federal Representatives & Regulatory Agencies 



ENGAGE WITH YOUR REPRESENTATIVES BY ATTENDING LOCAL TOWN HALL MEETINGS ,  MEET & GREET,  and OTHER  EVENTS IN YOUR STATE .  

FIND UPCOMING EVENTS HERE 

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Monday Media Marathon

➡️MONDAY MEDIA MARATHON ⬅️


CPP'S CONTACT your local/national media outlets & reporters to request an interview, ask for a spotlight piece about our plight, or make sure they're aware of what's happening to millions of Americans in pain. 


MEDIA SOURCES:  https://painwarriorsunite.com/media-sources-1
 

Click BELOW for full list of media 

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Tweet Trump Tuesday

➡️TWEET TRUMP TUESDAY⬅️

CPP'S LET'S ALL TWEET and/or CALL @POTUS @realDonaldTrump IN UNISON TODAY!


Share FACTS/STATISTICS/MEMES

Ask him 2 call off the DEA crusade against doctors & go after CARTELS, TRAFFICKERS & DEALERS instead like @WilliamJBennett has repeatedly stated.


Be respectful but relentless! 


#PainAwarenessMonth #endpainpatientabuse #illicitFENTANYLcrisis #PainPatientsVote 

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White House Wednesday

➡️White House Wednesday⬅️

Call the White House Switchboard ALL DAY today.

Hours are 9am-4pm (Eastern) 

Switchboard:

202-456-1414

Tell the operator that you want @POTUS to host a listening Session with Dr. Bill Bennett, Pain Doctors, & Pain Patients to discuss what's happening to millions of Americans like us!

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Twitter Thursday

➡️TWITTER THURSDAY⬅️

CPP'S LET'S ALL TWEET MOC's IN UNISON TODAY!

MEMES to share: https://painwarriorsunite.com/memes-%26-links-library

List of MOC's Twitter handles: https://twitter.com/govtrack/lists/members-of-congress?s=09

U.S. Senators: https://twitter.com/cspan/lists/senators?s=09

U.S. Representatives: https://twitter.com/cspan/lists/u-s-representatives?s=09

State by State Twitter Directory:

https://resist.blog/us-house-representatives-twitter-list/

TWEET CONGRESS: http://www.tweetcongress.org/tweeters

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Not on Twitter?  

You can find Congress' Facebook/Website pages here:  https://www.contactingcongress.org

(ALL Social Media, Phone #'s & Email Addresses for US Congress)

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Facebook Friday

➡️Facebook Friday⬅️


Today we're encouraging CPP'S to SHARE the Pain Task Force REPORT with U.S. Reps Facebook/Twitter pages & TELL them to implement our National Pain Policy immediately! 


Remind them that #PainPatientsVote & we have HUGE numbers to sway 2020 election!


REPORT HERE: https://www.hhs.gov/sites/default/files/pmtf-final-report-2019-05-23.pdf

As always be respectful,  but persistent. #PMTF 


List of Twitter & Facebook Accounts for U.S. CONGRESS:

https://triagecancer.org/congressional-twitter-handles

Senators: https://twitter.com/cspan/lists/senators?s=09


U.S. Representatives: https://twitter.com/cspan/lists/u-s-representatives?s=09


Be respectful but relentless! 


#PainAwarenessMonth #endpainpatientabuse #illicitFENTANYLcrisis #PainPatientsVote 

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HHS PAIN MANAGEMENT TASK FORCE FINAL REPORT

We need to get the HHS Pain Task Force's Report into the hands of EVERY State & Federal Legislator, State Regulators, and Media.


There are a couple of ways we can do this:

 

You can share the link to the REPORT with Members of Congress & National/Local Media contacts' Facebook/Twitter pages & underscore the urgency of our need for a National Pain Policy. (See Links Below)


Also,  you can CALL your Representatives & ask for the Health Care Staffer's Email address and tell them to expect to receive an urgent email with the Task Force Report. Make sure to follow up the next day to request a meeting/phone conference  to discuss implementing our National Pain Policy. 


Remind them that #PainPatientsVote & we have HUGE numbers to sway 2020 election!


Find out how to Contact Your Representatives HERE


TASK FORCE REPORT HEREhttps://www.hhs.gov/sites/default/files/pmtf-final-report-2019-05-23.pdf


List of Twitter & Facebook Accounts for U.S. CONGRESS:

https://triagecancer.org/congressional-twitter-handles


U.S. Senators: https://twitter.com/cspan/lists/senators?s=09



U.S. Representatives: https://twitter.com/cspan/lists/u-s-representatives?s=09



As always be respectful,  but persistent. 


#PMTF #PainAwarenessMonth #endpainpatientabuse #illicitFENTANYLcrisis #PainPatientsVote 



Report on Pain Management Best Practices: Updates, Gaps, Inconsistencies, and Recommendations



The Comprehensive Addiction and Recovery Act of 2016 (CARA) required the Pain Management Best Practices Inter-Agency Task Force to develop the Report on Pain Management Best Practices: Updates, Gaps, Inconsistencies, and Recommendations - PDF*, which identified gaps or inconsistencies, and proposed updates to best practices and recommendations for pain management, including chronic and acute pain.



HHS Blog: Patient-Centered Care Is Key to Best Practices in Pain Management by Dr. Vanila M. Singh, MD, MACM



Final Report Resource Kit


This Resources Kit includes a set of factsheets and infographics that summarize information from the Report that can help communicate recommendations for improving pain management. The resources below are listed by pain management related topic areas. Click the links below to download the PDF of each type of resource. These resources can be used in PowerPoint presentations, newsletters, or on social media accounts.



  • Overview – of the PMTF Report findings and background on the Task Force's efforts to improve best practices for acute and chronic pain management in light of the ongoing opioid crisis. Factsheet - PDF


  • Policymakers – at the Federal and State levels play a critical role in improving lives of chronic pain and advancing policy considerations identified by the Task Force. Factsheet - PDF


  • Special Populations – with unique challenges associated with acute and chronic pain, include children/youth, older adults, women, pregnant women, individuals with chronic relapsing pain conditions, racial and ethnic populations, active duty military, reserve service members, Veterans, patients with cancer-related pain, and patients in palliative care. Factsheet - PDF


  • Access to Care – learn more about the barriers such as lack of coverage, medication shortages and pain management specialists and stigma. Factsheet - PDF and Infographic - PDF


  • Stigma - can serve as a significant barrier to adequate treatment of pain – and can affect patients, families, caregivers, and even clinicians. Factsheet - PDF and Infographic - PDF



  • Education - for patients, clinicians, and policymakers is critical to the delivery of effective, patient-centered pain management. Factsheet - PDF and Infographic - PDF

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CPP'S WILL DECIDE 2020 ELECTION

Here's UNDENIABLE PROOF that the number of SINGLE ISSUE voters affected by  CHRONIC PAIN/OPIOID CRACKDOWN FAR outweighs 2016 number's in KEY battleground states!


Pain patients CAN sway the election unless President Trump takes a STAND to STOP the BARBARIC practice of UNTREATED UNDERTREATED PAIN!


#PainPatientsVote


See Breakdown of Voters/Margins:

https://threadreaderapp.com/thread/1174515501965426689.html

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**ALERT ** Submit Your Response

New Definition of Pain

IASP Survey


Request for Public Comments on Definition of Pain



The Definition of Pain Task Force of the (IASP) International Association of Pain, is requesting WRITTEN FEEDBACK in the form of a SURVEY to determine a proposed new DEFINITION of PAIN. 


ALL opinions are welcome


Click here to access the survey


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**ATTEND LOCAL EVENTS**

Engage with your members of Congress by attending LOCAL EVENTS (Town Hall Meetings, Meet & Greets,  Campaign Events, etc.) to publicly  address our cause.   


You can find upcoming EVENTS in your State HERE: https://indivisible.org/events


Please use our handy LEGISLATIVE OUTREACH KIT & ADVOCACY GUIDE located HERE 


CLICK HERE TO LOCATE YOUR STATE & FEDERAL REPRESENTATIVES & SIGN UP FOR THEIR NEWSLETTERS TO RECEIVE ALERTS ABOUT UPCOMING EVENTS IN YOUR STATE & DISTRICT.  


The only way to change the current pathway which has created a hostile regulatory environment is to GET INVOLVED IN THE LEGISLATIVE PROCESS ASAP!


Please let us know if you need additional assistance or if you'd like a packet of materials to bring along. S

Send a Unique Video Message or Email to Your Representatives

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Human Rights Watch Report

December 18, 2018


Human Rights Watch Report


Chronic Pain, the Overdose Crisis, and Unintended Harms in the US


The 99-page report, “Not Allowed to Be Compassionate: Chronic Pain, the Overdose Crisis, and Unintended Harms in the US” documents how some of these actions have had an unintended and harmful chilling effect, making doctors fear repercussions for prescribing even to patients with severe chronic pain who have a legitimate medical need for prescription opioids.

“There is no doubt the government has to take action to counter the overdose crisis,” said Laura Mills, a health researcher at Human Rights Watch. “But it should make sure that chronic pain patients don’t end up being collateral damage.”


“There is no doubt the government has to take action to counter the overdose crisis,” said Laura Mills, a health researcher at Human Rights Watch. “But it should make sure that chronic pain patients don’t end up being collateral damage.”


The report documents the negative impact of government efforts to reduce opioid prescribing to chronic pain patients. Based on dozens of interviews with patients, medical professionals, pharmacists, public officials, and health experts, this report describes how policies intended to stem the rise in overdose deaths have also driven harmful cutbacks in opioid prescribing to people who need these medicines.


Click Below to Read the Human Rights Watch Report in its entirety  



The Summary of Recommendations is located on Pages 16 & 17

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Action Needed - Re: AMA RESOLUTIONS

 **** Attention ALL CPP'S ****


At its interim meeting in late 2018, the AMA House of Delegates adopted a series of resolutions that recognize the mistreatment of pain patients and call for restraint in implementing the CDC guideline – particularly as it applies to the agency’s maximum recommended dose of 90mg MME (morphine milligram equivalent units).


This CAN be AMAZING & life changing news, IF it gets into the hands of those who are limiting our doctor’s ability to prescribe opioid pain medication!


AMA RESOLUTIONS: 


1. RESOLVED that our AMA affirms that some patients with acute or chronic pain can benefit from taking opioids at greater dosages than recommended by the CDC Guidelines for Prescribing Opioids for chronic pain and that such care may be medically necessary and appropriate.

2. RESOLVED that AMA advocate against the misapplication of the CDC Guidelines for Prescribing Opioids by pharmacists, health insurers, pharmacy benefit managers, legislatures, and governmental and private regulatory bodies in ways that prevent or limit access to opioid analgesia

3. RESOLVED that our AMA advocate that no entity should use MME (morphine milligram equivalents) thresholds as anything more than guidance, and physicians should not be subject to professional discipline, loss of board certification, loss of clinical privileges, criminal prosecution, civil liability, or other penalties or practice limitations solely for prescribing opioids at a quantitative level above the MME thresholds found in the CDC Guidelines for Prescribing Opioids.

Links To Articles: 


AMA’s 2018 INTERIM MEETING HIGHLIGHTS 

AMA: ‘Inappropriate Use’ of CDC Guideline Should Stop

AMA Delegates Back Physician Freedom in Opioid Prescribing

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Please DOWNLOAD THE  FORM BELOW & follow the INSTRUCTIONS  to get this URGENT INFORMATION to your state &  federal Representatives.



Add Your Name to the Community CDC Letter

Sign the Community CDC Letter

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Health Professionals Call on the CDC to Address Misapplication of its Guideline on Opioids for Chronic Pain through Public Clarification and Impact Evaluation


HP3 - Health Professionals for Patients in Pain has Authored a Community Letter to the CDC 


Authors: Health Professionals for Patients in Pain (HP3)


The primary authors are a group of five health professionals who decided to work together on the basis of shared concern. Our effort and this website represent solely our own work and we have not obtained support from biomedical or health interests, or patient advocacy groups.


They are asking Health Professionals, Pain Patients, and Caregivers to support their efforts by signing the Community Letter. 


The formal letter to be signed by health professionals ONLY is here.


If you're NOT a health care professional, please follow the instructions below.


INSTRUCTIONS FOR SUPPORTERS’ SIGNATURES and COMMENTS


Individuals wishing to register their solidarity with this effort, who are NOT health professionals, including patients,  family members & caretakers can sign the Supporters PAGE by adding your information below & we will forward it to be added to the community letter on your behalf.  


PLEASE INCLUDE:

Your Name,  City & State,  Your Condition (i.e. Chronic Pain Patient, Abandoned  Cancer Patient,  Disabled Veteran, Spouse of CPP, Caregiver,  etc.) plus any other information you would like to share including Your Story (Full or Abbreviated Version).


Please enter your information below.

Add Your Info Here

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PLEASE INCLUDE:

Your Name,  City & State,  Your Condition (i.e. Chronic Pain Patient, Abandoned  Cancer Patient,  Disabled Veteran, Spouse of CPP, Caregiver,  etc.) plus any other information you would like to share including Your Story (Full or Abbreviated Version).

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Did Your State's Attorney General Sign this Letter?

The National Association of Attorneys General (NAAG) has sent a letter to the U.S. Department of Health and Human Services (HHS) sharing concerns about the Pain Management Best Practices Inter-Agency Task Force Draft Report (Draft Report). The letter was addressed to Dr. Vanila Singh, chief medical officer for the Office of the Assistant Secretary for Health. 


As it stands, the Draft Report deviates from guidelines published by the Centers for Disease Control and Prevention (CDC), which are aimed at decreasing the risk of opioid misuse. The report suggests providers can rely solely on their judgement instead of consulting evidence-based recommendations. By doing so, it weakens recommendations for opioid prescription duration and dosage


“As attorneys general, we have witnessed the devastating effect of unfettered opioid manufacturing, distribution and prescribing on our public health, social services and criminal justice systems. The well-established risks associated with higher doses of opioids, prescriptions of longer duration, and concurrent prescriptions of opioids and benzodiazepines demand continued constraints.” 



Read the NAAG letter signed by 39 state and territory attorneys general


If your State Attorney General signed this damning letter to the Pain Management Task Force, please call or email him/her to share your disdain & disappointment. Also, request To schedule a meeting. 


Find your Attorney General HERE 



Click button to read the letter to the Task Force in its entirety.