Pain Warriors Unite - (202) 792-5600
START HERE! Everyone needs to know the facts. How can we educate others if we do not know what facts are the Truth vs Hype?
You can use these Templates to Email Federal and State Policy Makers to request a meeting, phone conference or Town Hall event.
Locate & call your State and Federal Representatives.
Share this information with Doctors and Medical Professionals & ask pointed questions about how they're being affected by pressure from Government Agencies.
Ask if you can leave some Flyers & Brochures behind & encourage them to join our fight!
Here is an updated List and useful links that can be used to contact local & national media sources.
Advocacy Tools for you.
Click Below for a Guide to Help & Assist you Advocate for Yourself or a Loved One.
State Legislature Websites:
Track State opioid legislation:
STATE REGULATORY/ RULEMAKING PROCESS:
Regulatory Process - StateScape
Regulations are rules passed by administrative agencies. While each agency may set particular guidelines for its own rulemaking process...
Know the Rules - ChangeLab Solutions
State rulemaking usually involves several phases, including providing notice that the agency is considering adopting or amending a rule; taking public comment; and approving and adopting the final rule. Advocates can request notice of proposed rules from the agencies that oversee their areas of interest. (13 pages·1 MB)
FEDERAL LEGISLATIVE/REGULATORY RESOURCES:
US Members of Congress by State (all inclusive with social media links): https://www.contactingcongress.org
Congressional District Map USA:
Track Federal Opioid Legislation:
The Federal Rulemaking Process: An Overview - FAS.org
37 pages·531 KB
In administrative law, rule-making is the process that executive and independent agencies use to create, or promulgate, regulations. In general, legislatures first set broad policy mandates by passing statutes, then agencies create more detailed regulations through rulemaking.
Information on the steps in the rulemaking process by which federal and state agencies craft regulations to enforce laws produced by legislatures.
WHAT IS THE FEDERAL REGISTER?
It is published every weekday, except on federal holidays. The final rules promulgated by a federal agency and published in the Federal Register are ultimately reorganized by topic or subject matter and codified in the Code of Federal Regulations (CFR), which is updated annually.
The Federal Register is compiled by the Office of the Federal Register (within the National Archives and Records Administration) and is printed by the Government Publishing Office. There are no copyright restrictions on the Federal Register; as a work of the U.S. government, it is in the public domain.
The Federal Register provides a means for the government to announce to the public changes to government requirements, policies, and guidance.
Both proposed and final government rules are published in the Federal Register. A Notice of Proposed Rulemaking (or "NPRM") typically requests public comment on a proposed rule and provides notice of any public meetings where a proposed rule will be discussed. The public comments are considered by the issuing government agency, and the text of a final rule along with a discussion of the comments is published in the Federal Register. Any agency proposing a rule in the Federal Register must provide contact information for people and organizations interested in making comments to the agencies and the agencies are required to address these concerns when it publishes its final rule on the subject.
The notice and comment process, as outlined in the Administrative Procedure Act, gives the people a chance to participate in agency rulemaking. Publication of documents in the Federal Register also constitutes constructive notice, and its contents are judicially noticed.
Regulations.gov is your source for information on the development of Federal regulations and other related documents issued by the U.S. government.
Through this site, you can find, read, and comment on regulatory issues that are important to you.
If you require assistance submitting a comment or submission, please contact the Regulations.gov Help Desk via phone or email.
Call Monday - Friday, 9 am - 5 pm ET
1-877-378-5457 (toll free)
National organizations may provide information on the regulation of the practice of medicine in other states.
State Opioid Dashboards HERE
Opioid Resources HERE
Find a PAIN SPECIALIST:
FIND UPCOMING EVENTS IN YOUR STATE HERE:
The management of chronic pain is challenging for both patients and clinicians. However, it can be done successfully. Consumers benefit most when their health providers collaborate with other professionals ( e.g., psychologists, addiction counselors, pharmacists) and when they take on a significant role in optimal management of their pain.
Consumers should discuss with their health providers treatment goals that include reducing pain, maximizing function, and improving quality of life. The best outcomes can be achieved when chronic pain management addresses co-occurring behavioral health disorders (e.g., depression, anxiety) and when it incorporates suitable nonpharmacologic and complementary therapies for symptom management.
The American Society of Anesthesiologists (ASA) is an educational, research and scientific society that works to elevate the standards of the medical practice of anesthesiology and improve patient care. Since 1905, ASA has played an important role in American medicine acting as an advocate for all patients who require anesthesia or relief from pain. ASA’s website provides information on treating chronic pain and the potential challenges of treating this condition, opioid treatment for pain management and non-opioid options for treatment.
The CDC Guidelines for Prescribing Opioids for Chronic Pain, provides resources on how to communicate with patients about the risks and benefits of opioid therapy for chronic pain, improve the safety and effectiveness of pain treatment, and reduce the risks associated with long-term opioid therapy. Download the checklist for prescribing opioids and browse additional clinical tools to help implement the recommendations.
HHS’ newly released National Pain Strategy, details steps the Federal government is taking to improve provider education on pain management practices and overcome barriers to improve the quality of pain care.
The PainEDU website provides numerous resources and information on managing chronic pain. Resources include a pocket guide to pain management, a client workbook and information on cross-cultural pain management.
The Mayo Comprehensive Pain Rehabilitation Center Program is an intensive 3-week outpatient program focused on providing multidisciplinary rehabilitative therapy to patients with chronic pain with the goal of improving quality of life and facilitating a return to regular daily activities.
Cognitive Therapy for Pain by Beverly E. Thorn is a paper that specifically targets the cognitive psychological processes (pain-related thoughts, attitudes, and beliefs) shown to be important predictors of satisfactory adjustment to chronic painful conditions.
The ECHO project done through the University of New Mexico is a telehealth project that allows providers from all over the country to get assistance for difficult pain management cases through virtual consultation with a pain management team at the UNM. This great resource for those practicing in rural areas without pain specialists for referral.
TIP 54: Managing Chronic Pain in Adults With or in Recovery from Substance Use Disorders equips clinicians with practical guidance and tools for treating chronic pain in adults with substance use disorders. This TIP includes information and resources on patient assessment, talking with patients about medication supply, addiction behaviors, opiod misuse measures, and pain treatment agreements.
Group Health established a major initiative to prevent Opiod abuse and overdose and make opioid prescribing safer while improving care for patients with chronic pain.
The Center for Practical Bioethics-Pain Action Initiative: A National Strategy (PAINS) shares podcasts, reports, and information from various national efforts to improve the treatment of individuals with chronic pain
Tips for Using the ADA - National Fibromyalgia & Chronic Pain Association
The Americans with Disabilities Act and Fair Housing Act can provide legal rights to improved community participation for people with fibromyalgia and chronic pain. How can reasonable accommodation work for you?
Civil Rights Case Gives Hope to Pain Patients — Pain News Network
How Can I Get Reasonable Accommodations For Chronic Pain? - Pain Doctor
Working with chronic pain can be difficult, but it doesn't have to be impossible. You are entitled to certain reasonable accommodations under the ADA.
NCIL TASK FORCE LETTER TO CONGRESS:
The Lifeline provides 24/7, free and confidential support for people in distress, prevention and crisis resources for you or your loved ones, and best practices for professionals.
Follow this link or call 1-800-273-TALK (8255) to access immediate assistance.
National Suicide Prevention Lifeline’s “With Help Comes Hope” website has information for survivors, friends and families, and clinicians. It has survivor stories, self-care tips, “7 things attempt survivors wish their friends and families knew,” a therapist and support group finder, videos, and more.
VETERANS PRESS "1"
CRISIS TEXT LINE:
Text 741741 from anywhere in the USA to text with a trained Crisis Counselor. Crisis Text Line serves anyone, in any type of crisis, providing access to free, 24/7 support and information via the medium people already use and trust: text.
Family & Youth Services Bureau's Family Violence Prevention Services Program exists to ensure that all victims of domestic violence have access to the services and supports that they need to live a life free of abuse.
A Guide for Taking Care of Yourself after Your Treatment in the Emergency Department is a brief brochure designed to support people in recovery from a suicide attempt. This resource guides individuals moving forward following emergency department treatment and coping with thoughts of suicide. A Spanish version is also available.
A Guide for Taking Care of Your Family Member after Treatment in the Emergency Department is an accompaniment to the patient guide designed for families coping with a relative’s suicide attempt. It reviews treatment processes and typical follow-up arrangements. A Spanish version is also available.
A Journey Toward Health and Hope: Your Handbook for Recovery After a Suicide Attempt guides individuals through the first steps toward recovery after a suicide attempt. Includes personal stories from survivors who share their experiences as well as strategies, such as re-establishing connections and finding a counselor to work with.
Stories of Hope and Recovery is a video guide for suicide attempt survivors and features inspiring stories from three people who survived an attempted suicide. Told through their voices and those of their families, the stories recount their journeys from the suicide attempt to a life of hope and recovery. Includes a video guide.
Each of these Files, Templates, Charts, Brochures and Packets can be used & shared to educate others about what is REALLY happening to Chronic/Intractable Pain Patients and the doctors that dare to treat them in today's political climate.
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This Guide outlines the simple steps you can take to optimize your Pain control and work with your Health care provider to develop a treatment plan that adequately addresses your Pain based on what works best for you.
Please CLICK BELOW to access the Tools and Resources to Self Advocacy.