Pain Warriors Unite - (202) 792-5600
Pain Warriors Unite - (202) 792-5600
Fellow Warriors,
So many of us are suffering the consequences of the crackdown on opioid prescribing, and since the release of the 2016 CDC Prescribing Guideline many advocates have worked feverishly to REVERSE the harmful effects on those of us in the pain community. It's taken an enormous amount of time and effort, but everything is finally falling into place.
This is a significant milestone for the pain community, and gives us the footing to take the necessary steps to actually garner the respect and attention we deserve.
The following REPORTS & NOTICES issued by various government agencies clearly ACKNOWLEDGE the urgency of our plight:
These Reports and Notices lay the groundwork to ensure that our Policy Makers put protections in place for both physicians and pain patients, and to ultimately implement a National Pain Policy that clearly defines and stipulates such protections.
We need YOU to take immediate action in order to get this information into the hands of Your State and Federal Representatives & Regulatory Agencies.
The FDA has acknowledged the harms from sudden discontinuation of opioid pain medications. They are now requiring a label change to ensure gradual individualized tapers, when necessary.
EXCERPT: “The Guideline is NOT intended to deny any patients who suffer with chronic pain from opioid therapy as an option for pain management... Clinical decision-making should be based on the relationship between the clinician and patient...”
Excerpt: "AMA advocate that no entity should use MME (morphine milligram equivalents) thresholds as anything more than guidance, and physicians should not be subject to professional discipline, loss of board certification, loss of clinical privileges, criminal prosecution, civil liability, or other penalties or practice limitations solely for prescribing opioids at a quantitative level above the MME thresholds found in the CDC Guideline for Prescribing Opioids.”
The 99-page report, “Not Allowed to Be Compassionate: Chronic Pain, the Overdose Crisis, and Unintended Harms in the US” documents how some of these actions have had an unintended and harmful chilling effect, making doctors fear repercussions for prescribing even to patients with severe chronic pain who have a legitimate medical need for prescription opioids'
NAAG sent a letter to the U.S. Department of Health and Human Services, expressing concern about the Pain Management Best Practices Inter-Agency Task Force Draft Report, which deviates from CDC guidelines aimed at reducing opioid misuse.
The Task Force Report emphasizes:
• Individualized, patient-centered care fostering a therapeutic alliance between the patient and clinician.
• Multidisciplinary approaches using treatment modalities and the biopsychosocial model to pain care.
• Consideration of special patient populations, as well as comorbid conditions that can accompany complex pain conditions.
Please use our handy Legislative Outreach Kit & ask for assistance if necessary. The only way to change the current pathway which has created a hostile regulatory environment is to GET INVOLVED IN THE LEGISLATIVE PROCESS ASAP
CLICK HERE TO LOCATE YOUR STATE & FEDERAL REPRESENTATIVES
Instructions , Tips, and Links to locate & Contact Your State and Federal Representatives & Regulatory Agencies
We need to get the HHS Pain Task Force's Report into the hands of EVERY State & Federal Legislator, State Regulators, and Media ASAP!
There are a couple of ways to do this:
You can share the link to the REPORT with Members of Congress & National/Local Media contacts' Facebook/Twitter pages (See Links Below)
Also, you should CALL your Representatives & ask for the Health Care Staffer's Email address and tell them to expect to receive an urgent email with the Task Force Report.
Find Your State & Federal Representatives HERE
TASK FORCE REPORT: https://www.hhs.gov/sites/default/files/pmtf-final-report-2019-05-23.pdf
List of Twitter & Facebook Accounts for U.S. CONGRESS:
U.S. Senators on Twitter:
U.S. Representatives on Twitter:
As always be respectful, but persistent.
USE HASHTAGS:
#UntreatedPainKills
#SuicideDueToPain
#SavingUsToDeath
#PainAwarenessMonth #endpainpatientabuse #illicitFENTANYLcrisis #PainPatientsVote
#OurPain
CPP Action: State Law Should Protect Access to Medicine
CDC Opioid Working Group | headsUPmigraine
Easy copy-paste-send advocacy! This report calls for an end to prescription opioid restrictions, which have greatly harmed people in pain without helping to reduce overdoses. Copy it, paste it in an email, and send it to your state lawmakers. Link to them below.
Text the word RESIST to me on iMessage, Messenger, Twitter,Telegram, or to 50409 on SMS* and I’ll find out who represents you in Congress or your state legislature, turn your text into an email, fax, or postal letter, and deliver it to your represenatives. 1-2-3.
OR CLICK HERE TO LOCATE YOUR STATE REPRESENTATIVES
Copy and paste the text in this DOCUMENT PREPARED BY HEADSUPMIGRANE HERE
If you’re a pain patient, add a few sentences to the first paragraph, explaining how you’ve been harmed by these restrictions. If you’d like to write a more personal letter, feel free to use this research as you see fit. If you’d like, you can say this report was written by Jill Piggott, PhD, Director of headsUPmigraine. But you are welcome to it without identifying its source.
Please ask your family and friends to join us. If they’re not pain patients themselves, they can copy-paste-send this version of the letter.
Thank you for joining our advocacy.
Jill Piggott, PhD, Founding Director
Nita Ghei, PhD, JD, Research Director
__________________________________________________________
Each of the memes below is a link that will open in a new page to a shareable and printable PDF that needs to be in the hands of every physician/clinic owner, medical board, state and federal policy maker, and possibly most important: every MEDIA outlet in the USA!
If we wait until the CDC and/or FDA do this for us, it could be another three years of fighting state laws, federal laws, and little support from anyone.
The first people to reach out to are your Members of Congress. As always, we suggest calling them first to ask for the best/current email for the health staffer and ask whoever answers the phone to pass along a message to the health staffer that you are sending recently released documents straight from the CDC, FDA, and HHS Pain Task Force regarding opioid prescribing and the CDC Guidelines. Then send these documents/links to the email addresses you just received with a paragraph about how the CDC Guidelines and forced tapering have affected your quality of life.
Finally, wrap up the email asking them to increase congressional investigation/oversight of the CDC Guidelines’ unintended consequences and of the weaponization of the Guideline by the DEA/DOJ using unfair strong armed tactics to target, investigate, and prosecute health care providers by circumventing due process under the law.
Click below to Locate your State & Federal Elected Officials' Contact Information.
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